huntington's

Huntington's Disease (Huntington's Chorea)

Medline NLM definition: an autosomal dominant disease characterized by chronic progressive chorea and mental deterioration terminating in dementia. The age of onset is variable but usually occurs in the fourth decade of life. Death usually follows within 15 years. (Dorland, 27th ed)

BBC Health - conditions: Huntington's Disease
Huntington's Disease factsheet: National Institute for Neurological Disorders and Stroke (US site)

PubMed (Medline) search on Huntington's disease

Huntington's Disease Clinical Research - A source of the latest information about all clinical research in HD being carried out through the HD Multidisciplinary Clinic of the National Hospital for Neurology and Neurosurgery, Queen Square, London, and by researchers at UCL Institute of Neurology, and aims to bring together information about clinical research projects in Huntington's disease (HD) for patients, carriers of the HD gene family members and carers.

Support Groups

Huntington's Disease Association
(see website for contact details)
The Huntington's Disease Association (HDA) is a registered charity which aims to provide a service to all those affected by Huntington’s disease in whatever way while raising awareness of the disease and the issues facing those affected by it.
The Association currently has more than 5600 members, 39 Branches and many support groups throughout England and Wales. The membership is made up of families, friends and professionals. The HDA provides information, training and support both for the individual and for professionals who are caring for families affected by the disease.

Scottish Huntington's Association
(see website for contact details)
The S.H.A. is the National Voluntary Organisation which offers information and support to families with HD,
their friends and professionals, through a network of local S.H.A. groups and professional staff acting as
Huntington's Advisors in various parts of Scotland.

Huntington’s Disease Society of America (HDSA) (US site)
(see website for contact details)
Dedicated to finding a cure for Huntington’s Disease (HD) while providing support and services for those living with HD and their families. HDSA promotes and supports both clinical and basic HD research, aids families in coping with the multi-faceted problems presented by HD and educates the families, the public and health care professionals about Huntington’s Disease.

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