Aicardi Syndrome

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Definition of Aicardi Syndrome, taken from NINDS factsheet (see below): Aicardi syndrome is a rare disorder characterized by the partial or complete agenesis (absence) of the corpus callosum (the structure that links the 2 hemispheres of the brain), infantile spasms (a form of  childhood seizure), mental retardation, and an ocular (eye) abnormality  called lacunae (lesions) of the retina of the eye. Aicardi syndrome may be  associated with other brain defects such as microcephaly (small brain) or porencephalic cysts (cerebrospinal fluid-filled cavities or gaps in the brain). Onset of Aicardi syndrome generally begins between the ages of 3 and 5 months. The disorder affects only females.

Aicardi Syndrome (information from Contact a Family)
Aicardi Syndrome  (information from the National Institute for Neurological Disorders and Stroke (USA) )

PubMed Medline search on Aicardi Syndrome

 

 Support Groups

CORPAL
(Check website for contact details)
Corpal
is a not-for-profit support group and charity run by parents, families and carers of children and adults who have ACC or Aicardi Syndrome.

Aicardi Syndrome Foundation
(US site.  Check website for contact details)
This US based website provides a chat room and information network on Aicardi Syndrome for families and professionals.

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